The association asked government to pause the expansion of pre-implantation genetic testing for monogenic disorders until affected communities take part in a transparent review. Malta’s original 2022 framework allowed testing for nine serious conditions, while Legal Notice 207 of 2026 added 17 more. The group argued that medical progress must be reconciled with the dignity and rights of disabled people and supported by balanced counselling. It also sought publication of approval criteria, consultation with disability organisations, clinicians and bioethicists, and stronger community and healthcare support for families.
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